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Четете книги за EB общността този Световен ден на книгата
This World Book Day, we want to highlight our collection of books for the EB community.
Our latest release is our comic book, Guardians of EverBright. Launched in 2024’s EB Awareness Week, it’s a tale of adventure, friendship, and the power of the human spirit. Join our heroes representing the EB community as they head on an epic quest!
The comic – aimed at children around the ages of 7-13 – is available for free on request for all our members.
Apart from being an exciting standalone story, our objective for the comic is that it can be used to help increase awareness and understanding of EB within schools.
Lots of our members have been enjoying the comic already, and know how helpful it can be in raising awareness and inspiring others with EB:
“I was delighted to receive my copy of EverBright and read it from cover to cover as soon as it arrived. Do you know it brought tears to my eyes – I was quite surprised by my reaction, but I think it was because it stirred memories deeply buried of living with EB as a child. What a wonderful project – I can imagine it will especially be immensely helpful if it can be used in schools where EB sufferers are pupils and very inspiring for young EB sufferers and their parents.” Член на DEBRA UK
One member, Year 5 student Ben, has been raising awareness of EB at his school using the comic. He even introduced Guardians of EverBright to everyone at a whole-school assembly, and shares what it means to him:
“I want not just my friends and family to know about EB, but everyone so they understand what it is. My headteacher donating to DEBRA will help make difference for people living with EB. I’m so happy that I was able to help with the creation of Guardians of EverBright because I love comic books. Having the books in our school library means everyone can enjoy them. Lots of my friends want to buy it and are visiting the DEBRA shop to donate things now.”
This comic is a brilliant result of our member involvement. We couldn’t have created the story without our members who took part in workshops to help shape the tale and its characters, and those who shared some great feedback at 2024 Members’ Weekend. Thank you again to everyone who got involved.
For younger readers, you can also try our other book, Debra the Zebra’s Birthday Party. This sweet story is aimed at children aged 2-7 with EB and their families, playgroups and schools. It’s all about friendship, finding solutions, and playing to your strengths even if you live with a medical condition like EB.
Можете да прочетете Дебра Зебрата онлайн or попълнете нашия формуляр за интерес за да поискате безплатно печатно копие.
Има и такива a whole range of books that have been written by some of our talented members living with EB. There are titles aimed at children and adults, that we’re always keen to share so you can find books that may interest you.
If you’re a member and don’t want to miss opportunities to get involved with projects like our comic book, you can регистрирайте се в нашата мрежа за участие to receive updates on any new opportunities as they come up.